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Keeping daydreams in check
Sitting in the hospital meeting room, Greenwood said there was little more he could do for Preston with the medicines available. Without something new, Preston’s seizures would continue into adulthood — assuming he didn’t die before then.
After sailing through Virginia's Senate, the House version of SB 1235 received a unanimous 98-0 vote in favor on Feb. 10. The bill prevents patients from being prosecuted for using cannabis oil for seizure-related conditions. On Feb. 26, 2015, Democrartic Gov. Terry McAuliffe signed the bill into law, making Virginia the 12th state to legalize CBD oil.
Combats neurodegenerative disorders
Now she can make any ratio she wants, Jason says. It’s the third formulation change since Preston started the oil six weeks ago.
“I thought it went really well,” she says.
Preston meets Dr. Alan Shackelford
“He is quite capable of going into a seizure that is basically all the time — all day and all night,” Greenwood said.
“It’s OK,” she whispers. “It’s OK, Boo-Boo.”
It wasn’t until Preston was 6 years old that doctors finally put a name to his condition: Dravet syndrome. And in some ways, that was worse than not knowing at all because it meant there was no cure to find.
May 12 Preston pulls back toward the lunchroom with Regina Lane, his in-school nurse, as he hears a friend in the hallway. Regina has been with Preston for five years. She knows that if something catches his attention, he will head in that direction. She also knows how to persuade him to focus on what he might be doing.
“He needs to learn to take it!” Ana says.
It was about a month before the move away from their little brick house in Greensboro, N.C., and, sometime in the night before, Preston left his own bed and sleepwalked into Ana’s. Sydney was already there. When Ana woke before dawn, she was nestled between children.
Her hopes for a new life seem to be coming true.
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