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Preston watches as Ana and her mother argue
In a lab in Seattle, black mice twitch uncontrollably as they work their way through an electrified cage, furry little avatars of kids with Dravet syndrome...
Preston’s grandmother, Milly, thought he had the munchies.
“We’ve pretty much tried everything else we can,” she reasoned.
At 12 years old, Preston cannot spell his name. He cannot reliably count to 10. He is still learning his colors. He doesn’t know his mom’s name or where he lives or how to call home if he gets lost. He wobbles when he walks and falls over easily.
It took 12 days after arriving in Colorado for Ana to get the marijuana oil for Preston’s first dose. Twelve days of waiting. Twelve days of seizing. Twelve days of wondering what would happen.
“It smells like marijuana,” she laughed. “I didn’t think it would.”
Step 1: At least one parent and the child must be Colorado residents. Residency can be established quickly.
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“We have a special squirt-squirt we need to do, OK?” Ana tells Preston, adopting a smile as she walks toward him. “You need to be a big boy.”
“Oma” — Preston’s grandmother Milly Raynor
Her bookshelf at home charted the journey and spoke to her struggle. First came “What to Expect in the First Year.” Then “Keeping Faith.” Then “Delmar’s Drug Reference for Health Care Professionals.” Then “Three Weeks to Say Goodbye.”
“You’re overdoing it,” Milly admonishes. “Skipping it is not going to hurt him.”
Consider how many people have died from cancer in the last 40 years. Now take a look at the National Cancer Institute website.
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