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A carefully designed watering schedule
May 8 The dregs of his afternoon seizure medications are still on his lips as Preston rests on his porch after a long day of school interrupted by numerous myoclonic seizures.
“Why did we even come down here if he’s not going to take it!?” she snaps.
Preston and Haleigh dance
Ana gets a firsthand view of the trimming and drying process
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Everyone in her family has their own vision of what Preston might be. Ana’s mom sees Preston getting a job at a park running a lawn mower. Ana’s dad — the man who taught Preston how to be a boy, to love mowers and tractors, and to shout, “Crank it!” — imagines playing catch with his grandson.
“I can’t be the parent who didn’t try,” said Janéa Cox, a mother from Georgia who brought her daughter to Colorado in March for treatment of seizures that left her unable to even breathe on her own. The move meant breaking up her family; her husband remained at home in Georgia.
Sydney tries to get Preston to drink some sweet tea
Graphic: Inside look at Preston’s fight
“But they don’t seem to me to be as long,” Ana said.
“Tried it,” Ana says.
Recovery room nurse Breanne Hagihara
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